There is
something that I’ve started noticing. I’ve written about it before, but after
giving it some thought, I’m dedicating a blogpost about it. Have you ever gone
through several stories in the media about people with different kind of
handicaps, who told their story? It almost always ends with the person managing
to make something of their life, finding a great job and being happy. They
still struggle, but they feel way better now.
It seems
that some people are expecting this from me too now. I have turned into some
kind of role model for some people and they seem to hang on to how well I’m
doing. Basicly: “If she can do it, then so can I!” Only, I can’t be doing well
all the time. I don’t have that happy ending yet. I haven’t found that one job
that suits me perfectly yet. In fact, I’m jobless and I don’t know if I’ll ever
get well at all. I’m now on my way to find that out. I’m still at the beginning
of all that, trying to get help at the Fatigue Centre and things like that. So
no, I can’t tell you I’ll be fine. Maybe I will! I do have hope that I will!
But I can’t promise anything.
I’ve been
thinking about how this happened. I have actually had a conversation where I
told my story to someone who has autism too and that person said ‘Yea okay,
that’s all sad and stuff, but you’re okay now right? You’ve found your way
right?’ and I responded with ‘Well, actually, no, I’m still trying to find my
way, but it’s hard…’ and that person had a sad look and simply said ‘Oh…’ and
turned around and walked away.
This is the
more extreme example of similar things that happened. People seem to actually
lose hope in themselves when I have trouble. Suddenly it turns into: “Well, if
she can’t even make it, then how can I?”
People,
please. Don’t forget that I’M NOT YOU. Every person is unique and I’m not
superman either. Just that I’m not there yet, doesn’t mean that you can’t
manage it. If you’re just looking for that happy ending story, then please
follow Aaron Likens. He’s an even better writer than me and he has found his
way after some terrible times. He’s now living his dream live. Find his blog
here: http://lifeontheothersideofthewall.blogspot.com
If you’re
just interested in a life from a person with Asperger’s and Chronic Fatigue who
is still trying to find her way and aren’t connecting your success with mine,
than my blog is the right place for you.
Some people
seem to think that I’m this emotionally super strong woman who can take
anything, since she’s been through so much already. How about I tell you I’m
emotionally quite unstable, BECAUSE I’ve been through so much already? This is
the sole reason I got Chronically Fatigued. It all went just a bit too far.
Again, I’m not saying I don’t have the hope that I’ll make it and I don’t think
very badly of myself. But I’m definitely not a superhuman. I’m just a person
who’s had a lot against her in life, still trying to find her way through that.
If you expect me to have a happy ending story for you, you’ll be disappointed.
I think
it’s because of our fondness of fairy tales. It always has this super nice
super hero, who has a lot of struggles, but ends up with ‘and he/she/they lived
happily ever after’. I think these stories work so well, because we’re all
trying to find a story where someone has made it, despite all the things he/she
went through. But I’m sorry, I can’t promise you this. I can’t even promise
this to myself. It’s too much pressure for me to ask me to be your role model.
I can’t. I’m just a person trying her best. We’ll just have to see.
You're more than just a person trying her best. You're a good friend trying her best, and you have a lot of people supporting you the best they can. And because of this, I'm sure you'll get your "happy ever after" sooner of later. It might not be today, maybe not even tomorrow, but you will get there.
ReplyDeleteI have no idea about the how, when and with who though ;)
Hoi, ik denk dat je jezelf een stukje beter zou kunnen voelen als je stopt met denken aan de gevoelens van anderen en met zorgen maken over hun. Iedereen is voor zichzelf verantwoordelijk. Misschien krijg je dan wat meer ruimte om rust te ervaren. Anders is het schrijven van dit blog juist belastend ipv dat het je helpt.
ReplyDeleteWat vind je ervan?
Aan de ene kant moet ik inderdaad niet zo zwaar tillen aan de gevoelens van anderen. Het is meer hun probleem dan de mijne. Aan de andere kant is het wel erg lastig voor me om me niet bedrukt te voelen als ik iemand de hoop in zijn/haar eigen toekomst zie verliezen door iets wat ik gezegd heb. Ook al is het niet echt mijn schuld, omdat diegene zelf de verkeerde connectie heeft gemaakt (mijn leven is niet die van hen), voelt het toch wel naar en vind ik het moeilijk van me af te zetten... Ik wil hoop verspreiden, niet de kop in drukken...
DeleteSja, wat kan ik hierop zeggen?
DeleteDeze blog is er juist voor jou, zodat jij een stek hebt om van je af te kunnen schrijven.
Verders zie ik jou totaal niet als rolmodel of wat dan ook. Don't worry.
Een ieder is uniek ;)
En inderdaad mensen die dat wel zo zien... dat is dan simpelweg niet slim van hen. Zo werkt het niet.
Ik vind het trouwens niet zo vreemd dat je nog zoekende bent. Je bent 20 nu toch?
Je hebt nog een heel leven voor je!
Mensen van 20 die al helemaal gesetteld zijn of wat ook, ik moet ze nog tegen komen ;)